Ms Society and the Federal Government are being idiots right now
Ottawa man says decision not to study new treatment 'demoralizing'
By JUSTIN SADLER Ottawa Sun
Evan Thornton, who has MS, says the treatment he received in Poland turned his life around. DARREN BROWN/Ottawa Sun
Evan Thornton, who has MS, says the treatment he received in Poland turned his life around. DARREN BROWN/Ottawa Sun
After suffering from multiple sclerosis for years, Evan Thornton’s life was turned thanks to a controversial surgery.
It’s a procedure he said every MS patient in Canada should have access to, which is why he’s upset about Wednesday’s decision by the federal government to stall any clinical trials on the treatment.
“I think it was a very demoralizing day for MS patients across Canada,” said Thornton, who was diagnosed with MS in 1999.
Thornton is one of perhaps thousands of Canadians who’ve travelled overseas to undergo angioplasty surgery to unblock veins in the neck. It’s a treatment — what has been coined the liberation treatment — developed by Italian researcher Dr. Paolo Zamboni who contends a huge percentage of MS patients suffer from blocked veins, which he says damages the brain and spine.
Since he returned from Poland, where he had the procedure in March, Thornton has started jogging again with his family. Before, he could barely walk five minutes without tripping over his own feet.
Ottawa resident and MS sufferer, Judy Filipkowski said the treatment is like being reborn.
To read more go HERE
Personal Note:
I heard the MS survivor on CFRA this morning and I am livid about what the Feds have done to him and many others. The MS Society is an amazing charity but alas it plays politics with peoples lives by ignoring any studies done through Dr. Zamboni and patients who are Canadian who have been given a much better quality of life.
In case you missed the news on MS I will give you a bit of what I have researched in a nut shell.
MS has been considered as a neurological disease but recently it has been found that veins in the neck in most patients have blockages, releasing the veins have been giving most MS patients feelings back in their bodies (legs, feet, etc...). This is not a cure but a treatment which is much better than taking drugs that cost $20,000 a year +++++++.
This surgery is simple and with a very small percentage of complications, basically taking out your appendix is more of a risk.
An ultrasound is done on your neck to find the blockage and then the neck is opened up adding balloons into the veins to help the flow of blood move down your body.
Anyone with a brain can figure out numbness is normally from a pinched nerve, so why can't the fuxxing Dr.s see it.
Whether the government wants to fund this or not should not be the issue, Evan Thorton said this morning on CFRA "whether the surgery has to do with MS or not, if you have blocked veins then the healthy treatment is to operate" (not exact words but close).
This is exactly right, if I go into the hospital and get tested for many things and they find I have blocked veins, the damn hospital better treat me.
Unfortunately Evan Thorton has been told by the hospitals "no we have been told Federally that we cannot do those tests on you".
Leaving the alternative, going to the U.S. or another Country to pay about $20,000 to have the surgery.
Canadians need to stand up and RALLY, make noise hell even bang on drums and make the FEDERAL government listen to you anyway you can.
Lives are at stake here, people are in tremendous pain while the government and MS society play politics...
The MP's and the MS directors could afford this treatment if they went to the U.S. can you?
Update:
Health minister rejects MS therapy trial
Canada won't fund clinical trial of so-called liberation therapy for multiple sclerosis
Last Updated: Wednesday, September 1, 2010 | 10:45 PM ET Comments637Recommend171
CBC News
Some Canadians with multiple sclerosis are going overseas for a controversial procedure known as liberation therapy that aims to improve blood flow from the brain. It is too early for a pan-Canadian clinical trial to test the treatment, Health Minister Leona Aglukkaq says.Some Canadians with multiple sclerosis are going overseas for a controversial procedure known as liberation therapy that aims to improve blood flow from the brain. It is too early for a pan-Canadian clinical trial to test the treatment, Health Minister Leona Aglukkaq says. (CBC)
The Canadian government will not fund a clinical trial of the so-called liberation therapy for multiple sclerosis at this time, Health Minister Leona Aglukkaq says.
Aglukkaq spoke to reporters in Ottawa on Wednesday, a day after a panel of North American experts announced they unanimously recommended against supporting a clinical trial of the treatment in Canada as yet.
Aglukkaq commissioned the expert panel's report from the Canadian Institutes of Health Research, which funds medical research, and the MS Society of Canada.
"I feel the most prudent course of action at this time is to accept the recommendation of the country's leading researchers," Aglukkaq told a news conference.
P.O.V.:
Should the federal government fund "liberation therapy" trials? Take our poll.
Liberation therapy is based on an unproven theory of chronic cerebrospinal venous insufficiency (CCSVI) — put forward by Italian doctor Paolo Zamboni — that blocked veins in the neck or spine are to blame for MS. Zamboni proposed treating multiple sclerosis by inflating small balloons to open up veins.
Some Canadians are spending thousands of dollars to seek the experimental treatment overseas.
CIHR head Dr. Alain Beaudet said experts weren't convinced Zamboni's procedure works and is safe. Beaudet said he advised Aglukkaq that it was too early to back clinical trials.
Safety questions
In June, the MS society and its U.S. counterpart awarded a combined $2.4 million in research grants to diagnostic studies aimed at testing whether Zamboni's theory is correct, by checking for abnormal blood flow in the veins in people with MS and healthy controls using ultrasound, MRI or catheters with dye. The research projects are expected to take two years.
Yves Savoie, the president of the MS Society of Canada, said Wednesday that his organization would monitor the results of the studies.
Read more: http://www.cbc.ca/health/story/2010/09/01/ms-ccsvi-liberation-aglukkaq.html#ixzz0yQ1gb9Sp
Labels: canada federal government, Evan Thorton, MS Society



